ASCO maintains a repository of information that qualified individuals and organizations may request for research purposes, e.g., ASCO COVID-19 Registry, meeting abstracts and datasets from the Targeted Agent and Profiling Utilization Registry (TAPUR) study (coming in late 2023). Subject to the Information Sharing Policy of ASCO, ASCO will evaluate requests, determine whether the request meets ASCO’s standards, and determine the appropriate fee for the provision of ASCO Information.
The request review process is managed by the ASCO Center for Research and Analytics (CENTRA). CENTRA’s mission is to conquer cancer by generating, integrating, analyzing, and sharing oncology data to foster innovation in research and patient care.
ASCO’s Available Datasets
ASCO COVID-19 Registry Data
The ASCO Survey on COVID-19 in Oncology Registry (ASCO Registry) aims to help the cancer community learn more about the patterns of symptoms and severity of COVID-19 among patients with cancer, as well as how COVID-19 is impacting the delivery of cancer care and patient outcomes. The ASCO Registry collects baseline and follow-up data on how the virus impacts cancer care and patient outcomes for up to two years after a patient with cancer is infected with SARS-Cov-2. Explore the information further using two data visualization tools – the ASCO Registry Dashboard and Interactive Map of Oncology.
Dataset Description (pdf) | ASCO Registry Code Book (pdf) | Full ASCO Registry Description Package (zip)
Meeting abstracts represent a full accounting of the research presented in oral or poster form at ASCO meetings over the past 40 years and reflect the state of the science as well as changes in oncology over the last few decades. Abstracts can be used to identify changes in practice, to pinpoint the timing of scientific breakthroughs, and provide a network analysis of authors.
Dataset Description (pdf) | Sample Dataset (pdf) | Sample Dataset (accdb) | Sample Dataset (csv) | Meeting Abstract Description Package (zip)
Quality Oncology Practice Initiative (QOPI)
QOPI is an oncologist-led, practice-based quality assessment program designed to promote excellence in cancer care by helping practices create a culture of self-examination and improvement. QOPI provides a standard methodology, robust library of quality metrics for oncology, and a collection tool to reliably and routinely assess care, inform quality improvement activities, and demonstrate quality to patients and external stakeholders. Practices participate in manual abstraction onto the secure web-based platform twice per year. For more detailed information about QOPI, please visit ASCO Practice Central.
CancerLinQ Discovery is designed to further ASCO’s mission of improving patient outcomes and quality, with the long-term goal of enabling the oncology community to learn from the experiences of millions of patients with cancer to help optimize the care of each patient. CancerLinQ Discovery offers the broader oncology community access to distinct sets of de-identified patient data with the purpose of investigating specific research questions. For more detailed information about CancerLinQ Discovery, please visit: cancerlinq.org
Steps for Obtaining ASCO Information for Research
Step 1: Submit Request
- Complete the Research Project Proposal Application
Step 2: Review of Application
- ASCO will conduct an information availability and sufficiency check
- If the requested information is available and able to address the request, ASCO will determine whether the request is consistent with ASCO’s Information Sharing Policy.
- A team of ASCO staff will evaluate the request based on scientific merit, qualifications of the research team, concordance with ASCO's mission, priorities, and other criteria listed in the policy or determined by ASCO
- At any time, ASCO may request additional information from the applicant
Step 3: Decision, Contract & Fulfillment
- ASCO will notify the applicant of the decision (approved, denied, or requires additional information)
- If the request is approved, ASCO will send the applicant a draft Data Use Agreement and estimated fulfillment cost
- ASCO will provide the applicant with the requested information once the Data Use Agreement is signed and payment is received
Interested parties should email any questions. All data requests must be made through the above-described CENTRA application. ASCO will make reasonable efforts to evaluate all compliant requests and retains sole discretion regarding whether or not to fulfill requests.